Here are some groups with which we are most familiar and which were helpful to us. There are probably more out there, perhaps asking the medical center where care is being administered might yield more results.
Johns Hopkins (http://pathology.jhu.edu/pancreas/
) is the leading center for the treatment of pancreatic cancer. More pancreatic cancer surgery is performed at Hopkins than at any other center in the world. Hopkins has a unique multidisciplinary clinic for the evaluation of difficult pancreatic cancer cases. The Hopkins Pancreatic Cancer Web Site hosts an active Discussion Board for patients and families, and contains useful material on ongoing pancreatic cancer research.
Pancreatic Cancer Action Network
The Pancreatic Cancer Action Network (www.pancan.org
) is a nationwide network. The Pancreatic Cancer Action Network's Patient and Liaison Services (PALS) program is a comprehensive, free, information service for pancreatic cancer patients, their families and health professionals. Callers to the PALS program are matched one-on-one with highly trained, dedicated PALS Associates to answer their questions and provide support. The PALS program is the only one of its kind providing quality, detailed information on topics including diagnosis, treatment options, clinical trials, diet and nutrition, specialists and support resources. Individuals are encouraged to contact PALS as many times as necessary to get the information needed throughout their pancreatic cancer journey.
Gilda's Club (www.gildasclub.org
) is a wonderful resource. They have wellness groups, exercise, yoga and relaxation for cancer patients as well as support groups for families. All services are free of charge and open to anyone being treated for cancer or their family.